![]() ‘As I had previously cared for others at work, I thought I could do it, but this was my mum, not a stranger! I tried to just see it as a job, but I couldn’t. You feel totally locked into it and very isolated. If I didn’t do something, it wouldn’t get done. ‘The commitment is total and absolute – there’s no escape. ‘It was quite intense, straightaway,’ she says. Kay found caring for her mum extremely challenging. Sometimes you just need things to be spelled out.’ ‘I also found their information quite interesting – practicalities you might not have thought about. Alzheimer’s Society is very good at signposting,’ she says. Not long after moving, Kay contacted the Society. ‘She started to need prompting, which gave me an indication.’ ‘I wanted to know how much her memory was declining, so I had key questions I would ask her, like the names of her five bridesmaids, as a check,’ says Kay. ‘I am a trans woman, but at this time I was still her son,’ explains Kay.īefore coming down, Kay hadn’t been so aware of Jackie’s memory problems, but was told that her mum couldn’t remember things she’d been doing and was starting to have accidents using the hob. Kay was living in Scotland, semi-retired, having previously worked for the disability charity Scope and as a manager of residential homes.Īfter Jackie’s second husband died, Kay moved down to Bollington to care for her mum full time in 2013. All-Party Parliamentary Group on DementiaĪround 2011–2012, Jackie was diagnosed with Alzheimer’s.Carer Information and Support Programme.What’s it like to take part in research?.Research on risk factors and prevention. ![]() Make your organisation more dementia friendly.Making your community dementia friendly.Take part in Dementia Voice opportunities.Benefits for people affected by dementia.Using technology to help with everyday life.Equipment, adaptations and improvements to the home.Five things you should know about dementia.
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